Mistreatment of Children with ME/CFS – Request for Information

I am posting this request from Craig Robinson which first appeared on Facebook yesterday. I think it is important so please get in touch if you can help.


I can’t tell you why (legal reasons) but I can assure you that this is for a very good cause. I need as many examples as possible where CFS/ME patients (children please) have been mistreated by the psychiatric profession or psychiatrists in general. All examples will be useful, whatever the scale of the mistreatment or abuse. Please do not assume that I know anything! I can assure you that your name will not attach to anything. It is best if you send on cases which are referenced to publicly available documents. Sorry to put upon you in this way but I want to get this as right as possible. Many thanks Craig – PS pm me if you prefer. xx

Obviously it is not appropriate to speculate publicly exactly what this is about but I would just like to add that Craig is a very good guy and I’m sure he has the best interests of children with ME very much in mind when making this request. If you are on Facebook, please get in touch with him directly as he requests. If you are not on Facebook, you are welcome to pass information on to him through me – the best way to do it is probably to leave a brief comment here, including your email address (which will not be published) on the comments form then I’ll get back to you and we can correspond via email.

7 thoughts on “Mistreatment of Children with ME/CFS – Request for Information”

  1. Of course, if the European Convention on Human Rights, Articles 10 Freedom of Expression, and 11 Freedom of Association, weren’t being violated against us all, we could ask Nigel Speight for a list…

    Liked by 1 person

  2. I’m not sure if this counts as being a child but at 17 my GP told me I was just being a teenager p, to stop being lazy and set an alarm.


    1. Sorry to hear that you had to go through that. Unfortunately such an attitude remains all too common. As long as GET and CBT remain the only recommended ‘treatments’ for ME, too many busy GPs will remain under the misapprehension that this is a mental health condition or – worse – just an attitude problem on the part of the patient.

      Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: